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Care

Care is the mode of supporting people close to us in a way that remains sustainable over time. Personal experience has shown me the importance of sharing responsibilities, caregiver recovery, clear boundaries, support and observing changes in a loved one's condition.

·Care is a system, not a momentary emotional impulse. Sustainability, not self-sacrifice, belongs at its centre.
·Care includes recovery for caregivers. Without it, both their well-being and the quality of support deteriorate.
·Care relies on information and agreements, not only guilt or a sense of obligation.
·Share responsibilities: medical matters, daily living, communication with clinicians and practical support.
·Plan recovery for caregivers: sleep, breaks, their own health and psychological support.
·Keep simple observations of the person's condition, changes, relevant indicators and reactions to interventions.
·The care arrangement remains sustainable rather than collapsing after a few months through caregiver exhaustion.
·The dignity and agency of the person receiving care are preserved; they are never treated merely as an object of care.
·No comprehensive burnout or breakdown of family relationships.
·Care must not rely on one person's constant self-sacrifice. That is a path towards system failure.
·Care must not become performative help driven by guilt that does not improve the person's quality of life.